Who We Are – The Team

Our Staff & Volunteers

The BANA team comprises employees at our Head Office in Chesterfield, our Board of Trustees, plus a host of volunteers from around the country who act as area support group leaders, fundraisers and area group administration roles.

Board of Trustees

Craig Stevens
Chair of Trustees

Craig is a medical writer and patient advocate who has worked in medical communications for over 20 years. He is passionate about helping people understand complex medical concepts and language. The work he does involves translating information into easily accessible segments so that people aren’t overwhelmed by the complexity and amount of information they receive. Craig also has an interest in health psychology.

Craig is delighted to join BANA as a trustee.

After starting out in Sunny South Africa, he moved to France where he spent 20+ years before settling in Oxford around 6 years ago. He enjoys travel and Photography as well as learning new languages.

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Board of Trustees

Vice Chair - To be announced

Board of Trustees

Andrew Shipsey
Trustee & Treasurer

I am honoured to have joined the BANA Board as Treasurer. I currently work in the finance department at University Hospitals Plymouth NHS Trust as Head of Financial Support.

I joined the NHS as a finance graduate trainee back in 2005. In the first few years of my career I was asked to cost an acoustic neuroma procedure (I didn’t know what that was at the time), and was involved in a business case to replace linear accelerators, one of which was to have the ability to do stereotactic-radiotherapy and radiosurgery, met the Medical Director, who was to become my surgeon, about potential investments in cyberknife and gamma knife and worked with budget holders about gaining funding to support patients with neurofibromatosis II.

 

It was therefore almost fate that I was diagnosed with an acoustic neuroma in 2014. I was starting to have problems with my balance, I was never great at football but I was even worse with little to no balance, hearing – I was struggling to hear music on my headphones, I thought the headphones were broken but in hindsight it was my hearing that was not working and had gaze-evoked tinnitus. I was referred to the hospital for an MRI scan after initially being told I had water behind my eardrum.

I received a phone call the day after my scan asking me to come in. I wasn’t expecting to be called back so soon to get given good news. Indeed, by this time, with the symptoms I had, I had identified an acoustic neuroma as the likely culprit. However, I was not expecting to be told I had a 4cm tumour that was pressing against my brain stem that needed fairly urgent treatment.

A few weeks later I was having my first operation. I was advised by the consultant that it would feel like I had been ‘knocked for six’, and he wasn’t wrong. It was exhausting trying to get on my feet again but slowly it felt like I was getting better, with a huge amount of patience and support from my family. I went to see the consultant in clinic and was told that about half of the tumour was removed in the first operation, and I would need another. I had my second operation the following year. Whilst still a big operation, the recovery felt smoother second time around. In the second operation my facial nerve was bruised and I was unable to blink for a few weeks. With some rehab and massaging, the nerve regained some strength. I can just about blink now, but still have some weakness on that side – I notice a lopsided look in photos but I think we notice things like that more than others!

Due to the location of the tumour near the brainstem and facial nerve, some tumour remained after the second operation. I was listed for stereotactic radiosurgery the following year, with the aim of stopping the tumour from growing any more. It therefore came as a shock that after the SRS the tumour grew in size. I understand that this can happen with SRS, but was unnerved to know that if it did continue to grow a third operation may be needed.

In the last few years, the tumour does appear to have remained the same size. It is larger than I would like, but whilst I am still able to work and drive and largely live the life I had pre-diagnosis, no further treatment is planned. I am having annual surveillance scans to keep an eye on it.

I am immensely grateful to the NHS for saving my life and the support offered by BANA to myself and my family at a difficult time. Interacting with others on the BANA Facebook group, hearing the stories of other patients in the newsletter and picking up hints and tips have been a huge source of support.

I am looking forward to bringing my professional skills, and determination to help those on their AN journey to the BANA Board.

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James Gibbons
Trustee & Accountant

James was diagnosed with an Acoustic Neuroma in August 2016, whilst living in Australia, where he had emigrated to in 2004. Due to the size of the tumour, around 3cm, surgery was the only option and was duly carried out on 5th Oct 2016. (A date you never forget!)

James is a Chartered Management Accountant, his career having taken him through a diverse range of business sectors: Mining, Electricity Generation, Fashion, Transport, Consulting, Higher Education and, in his last role, as Finance Manager at a medical research institute in Melbourne.

 

Upon returning to the UK in February 2019 James joined Bana as a member, went along to a support group in Nottingham and soon found himself helping out with the accounts, and became a Trustee and Treasurer later that year. After 3 years as a Trustee, James stepped away for a while, but is now delighted to be re-joining the Board as a Trustee.

James is a lifelong supporter of Liverpool FC, plays Bowls in the Summer, and as often as possible can be found cycling around the country lanes of North West Leicestershire.

He is delighted to re-join the BANA Board of Trustees

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Peter Monksfield MB, ChB, FRCS (ORL-HNS), DLO, MSc
Trustee

Peter is a consultant ENT surgeon with a special interest in the skull base and treatment for Acoustic Neuroma. He was appointed as a consultant at the University Hospitals Birmingham in 2010 and is the current lead for Skull base surgery. Peter runs a dedicated Acoustic Neuroma clinic and has hundreds of patients under his care. He is delighted to join the board of trustees at BANA.

Andrew Read
Trustee

Andrew was diagnosed with an Acoustic Neuroma in 2017. Then went on to have translab surgery on the 22nd of May 2017; that date will never be forgotten as it was the Manchester Arena bombing that evening; he also turned 40 in March.

In January 2017, Andrew joined a local running club; over the years, this has proved to be an incredible part of his positive recovery, from the people he has met to the confidence he has gained from fellow runners. He is now a member of the club’s committee.

Andrew took on a crazy running challenge in 2012 called 12IN12, 12 marathons in 12 months. All this to raise awareness & funds for the three incredible charities that have been there for him over the years, in his words, “ to give a little back”.

For the last few years, Andrew has volunteered for BANA on zoom chat meetings, under 35s & other meetings when needed. His positivity and outlook on life & and the will to never give up is an inspiration for other AN patients.

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Juliette Buttimore RN MSc
Trustee

Jools has worked as a nurse practitioner for the NF2 and skull base (ENT) service at the Cambridge Skull Base Unit since 2010. She is co-lead for the NF2 service for the East of England/Midland region. She is the team’s lead for user and carer issues and patient experience. She has previously sat on the British Skull Base Society Council and advises various relevant charities and support groups.

Jools runs nurse-led clinics for patients diagnosed with a vestibular schwannoma post-surgery or on surveillance and is a direct point of access for patients experiencing issues with symptoms related to their tumour or treatment. She attends regular skull base MDT meetings and consultant-led clinics to provide patient advocacy and support.   Recent research projects have focused on the probability of growth in vestibular schwannoma and when surveillance imaging should cease. Her Master’s dissertation focussed on the effect of vestibular schwannoma on quality of life and argued for improved emotional support for patients with vestibular schwannoma, focusing on helpful coping interventions and virtual follow-up.

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Pooja Patel
Trustee

Pooja was diagnosed in May 2023 with a 4cm Acoustic Neuroma compressing the Brainstem. Her main symptoms were Tinnitus, a feeling of fullness in the left ear and some minor balance problems. She had Translab surgery in November 2023, and is now adjusting to single sided deafness and some ongoing unsteadiness with balance. Pooja has a degree in Pharmacy, and spent several years in this capacity. She now works as a Customer Success Operations Manager at Tendale – offering digital quality assurance solutions to healthcare organisations. Pooja is also a member of our Listening Ear Team. Pooja is honoured to be onboard as a BANA trustee, and to work with BANA to help and support those affected by an Acoustic Neuroma.

Sara Crosland
Trustee

Bio to follow

BANA HQ STAFF

Steve Wheeldon
Chief Executive Officer

With a distinguished career spanning 40 years in the Consumer Finance Industry, Steve Wheeldon brings a wealth of experience and a forward-thinking approach to his role as Chief Executive Officer at the British Acoustic Neuroma Association (BANA). Since joining the team, Steve has been pivotal in managing and administering the charity, working closely with our Trustees to ensure effective governance and strategic direction.

Steve’s role encompasses the development of core strategies and meticulous budget management, ensuring that BANA operates smoothly and sustainably. He leads our core operational activities, including governance and fundraising, with a commitment to enhancing our impact and outreach.

Outside of his professional life, Steve is an avid supporter of his local football team and enjoys the thrill of Formula One racing. His passion for these pursuits reflects his energetic and dynamic approach to both work and leisure.

If you’re inspired to explore fundraising opportunities, seek advice, or simply want to chat, Steve is your go-to person at the BANA head office in Chesterfield. Reach out to him anytime to delve deeper into how you can make a difference. His door is always open for support, guidance, or a friendly conversation. Contact Steve to make your ultimate fundraising goals into reality.

Steve is based in the BANA head office in Chesterfield, and can be contacted for help, advice, or just a chat anytime.

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BANA HQ STAFF

Lou Jolley
Community Support Administrator

Lou has over 40 years NHS experience working as a Senior Registered Staff Nurse  and the last 25 years of this as Community Staff Nurse. Lou also has  20 years experience in Bookkeeping, which she did on a small scale alongside her nursing, and she has excellent communication skills. Lou is based in our Chesterfield office, and can be contacted for help, advice or just a chat anytime.

BANA HQ STAFF

Elaine Hallam
Community Support Administrator

Elaine has worked in the NHS for over 30 years in various roles clinical, administrative, and Managerial. Having worked for Queens Medical Centre in the past in the Audiology Department she has been involved in the clinics held there.  Her most recent role was as Centre Manager for a Community Hospital and Primary Care Centre in Retford looking after the estates and facilities including reception and portering staff.  She has NVQ’s in levels 3,4,5 plus a foundation degree in Business Administration and a diploma from Birmingham University in Employment Law. Elaine is based in our Chesterfield Head Office and can be contacted for help, advice or just a chat anytime.

Patrons

Brian C.J. Moore – Emeritus Professor of Auditory Perception
Patron of BANA

Brian Moore is Emeritus Professor of Auditory Perception at the University of Cambridge. His research interests are: the perception of sound; mechanisms of normal hearing and hearing impairments; the relationship of auditory abilities to speech perception; design of signal processing hearing aids for sensorineural hearing loss; methods for fitting hearing aids to the individual; design and specification of high-fidelity sound-reproducing equipment; perception of music and of musical instruments.

He is a Fellow of the Royal Society of London, a Fellow of the Academy of Medical Sciences, a Fellow of the Acoustical Society of America, a Fellow of the Association for Psychological Science, and an Honorary Fellow of the Belgian Society of Audiology and the British Society of Hearing Aid Audiologists. He is a member of the Experimental Psychology Society (U.K.), the British Society of Audiology, The American Auditory Society, the Audio Engineering Society, and the Association for Research in Otolaryngology. He is President of the Association of Independent Hearing Healthcare Professionals (UK). He has written or edited 19 books and over 600 scientific papers and book chapters. He is an associate editor of the journal Hearing Research. He has been awarded the Littler Prize and the Littler Lecture of the British Society of Audiology, the Silver and Gold medals of the Acoustical Society of America, the first International Award in Hearing from the American Academy of Audiology, the Award of Merit from the Association for Research in Otolaryngology, and the Hugh Knowles Prize for Distinguished Achievement from Northwestern University. He is wine steward of Wolfson College, Cambridge.

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Patrons

Professor Richard Ramsden
Patron of BANA

Patrons

Our Ambassador

Sara Crosland
BANA AMBASSADOR

Thank you to Sara for continuing to play a significant part in the BANA team. As Ambassador for our charity looking at opportunities to raise the profile of BANA and raise awareness of Acoustic Neuromas. You are a breath of fresh air, a burst of energy and a pleasure to speak to. We are honoured to call you our Ambassador!

Our Ambassador

Danielle Gibbons
BANA AMBASSADOR

In July 2015, I had surgery to remove an Acoustic Neuroma. Following the surgery, I was left completely deaf in my left ear and needed to rebuild my balance and redevelop the ability to walk unaided. After spending two days unconscious and a week in the hospital, I returned home to continue my recovery. During diagnosis, surgery and recovery, I was a Professional Footballer for Liverpool FC, and almost three months to the day after surgery made my debut in the Champions League. Now, I am continuously trying to share my story to help inspire people facing their life struggles.

 

I’m determined to raise awareness of brain tumours and vital funds for this incredible charity. I feel fortunate to share my journey and experiences with others affected by ANs and regularly chat with people to educate them and provide support. Had I been given a choice to have the brain tumour or not, I would choose to go through the same journey again. As difficult as it’s been at times, it’s allowed me to meet some inspirational people, share my journey to help others, and give me an inner strength that I didn’t realise I had.

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